NF Forward | Neurofibromatosis
NF Forward | Neurofibromatosis
A documentary series about the extraordinary people living with Neurofibromatosis
NF Forward
Being Kylie Earle
Kylie suffers from a rare genetic disease called Neurofibromatosis which from birth affected her left eye. She has never been able to see from it, as she got older the plexiform tumors caused her eye to be removed. Against odds Kylie, a bubbly 16yr old is a high performing athlete, a back spotter in the Texas Elite Cheer team. While facing crippling mental blocks and battling low muscle tone because of her condition she preserves in a sport that favors not only physical aesthetics but requires precision, strength and flawless technique.
Off the Breaks
The Story of Travis Carpenter
“Off The Breaks” tells the story of Travis Carpenter who lives with his basic sense of mobility in jeopardy. Travis has lived in the fear of breaking most of his life. From the age of 2 a tumor, caused by a rare disease called Neurofibromatosis, has been growing from his spine down his leg.
The short received 5 Telly awards (4 silver and 1 Bronze - for Directing, Cinematography & Editing), It was shortlisted at The AICP (Association of Independent Commercial Producers) awards for PSA & received Official Selection at the 39th Chicago International Children’s Film Festival.
The Pearson Twins
Identical twins, Adam and Neil Pearson, are navigating life in South London with a rare genetic disorder, neurofibromatosis. Despite their identical DNA, the twins are affected in vastly different ways. The one thing that remains the same is their perspective of life and how to live it best.
Maddox
Aiden
Teaqua & Jada
A Mother and Daughter, Teaqua and Jada, both suffer from the same rare genetic disorder, Neurofibromatosis. This video highlights their relationship and how young Jada perseveres, despite the impact the disorder has made on her, by living her life and “Ignoring the Haters”.
CREDITS
being kylie earle
Director - Rory Mcharg
Producer - Stevie Ansara
Executive Producers - Jonathan Braue, Joseph Talbot, Rory McHarg & Nate Segall
DP - Dimitrius Ramirez
Editor - Larissa Hanna
Colorist - Patrick Sexton
Sound Design & Mix -Mike Regan
Original Music - Zak Engel
OFF THE BREAKS
Director - Rory Mcharg
Producer - Stevie Ansara
Executive Producers - Jonathan Braue, Joseph Talbot, Rory McHarg & Nate Segall
DP Dimitrius Ramirez
Editor - Joe Talbot
Colorist - Patrick Sexton
Sound Design & Mix -Zak Engel
Original Music - Rhian Sheehan & Louis Baker
Maddox
DIRECTOR - Jonathan Braue
EXECUTIVE PRODUCERS - Jonathan Braue, Joseph Talbot
PRODUCER - Stevie Ansara
DIRECTOR OF PHOTOGRAPHY - Dimitrius Ramirez
EDITOR - Joseph Talbot
COLOR GRADING - Patrick Sexton
SOUND MIXING & DESIGN -Post Haus
The Pearson Twins
DIRECTOR- Jonathan Braue
PRODUCER - Kenny Ingle
DP - Cody Cochran
EDITOR- Joseph Talbot
COLORIST - Patrick Sexton
Aiden
DIRECTOR - Hamoody Jaafar
EXECUTIVE PRODUCERS - Jonathan Braue, Joseph Talbot
PRODUCER, Stevie Ansara
DP - Dimitrius Ramirez
EDITOR - Joseph Talbot
COLORIST- Patrick Sexton
ORIGINAL MUSIC - Stand Up by Josh Atkinson Courtesy of Primary Color Music LLC
Teaqua & Jada
DIRECTOR - Hamoody Jaafar
PRODUCER - Stevie Ansara
DP - Cody Cochran
EDITOR - Chent Steinbrink
COLOR - Patrick Sexton
