Neurofibromatosis is a genetic disease that causes tumors to grow on nerve pathways throughout the body. NFX drives bold, high-impact research to discover and develop targeted treatments for neurofibromatosis, or NF.
nfx
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Longform Story Development
Director Treatments
Documentary & Narrative Style
Event Design
Social Marketing -
Pre-Production + Tech Scouting
Location + Talent Management
Production + Equipment Management
Director + DP Talent -
Editorial
VFX
Sound Design
Music Supervision
Music Composition
Archival Management
Festival Strategy
making the rare visiblE
NF is usually diagnosed in childhood. It manifests very differently from person to person, including in biological siblings. At present, there is no way to predict who will develop which features of the disease and how severe those features will be. We research and develop films that explore the human complexities for families living with this condition, focusing on courage and strength and the medical advancements researchers and doctors are making towards a cure.
$89MM Raised for research
off the breaks
This is story of Travis Carpenter, who lives with his basic sense of mobility in jeopardy. Travis has lived in the fear of quite literally breaking for most of his life.
From the age of two, a tumor caused by Neurofibromatosis has been growing from his spine down his leg. This is his story… so far.
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Writer & Director | Rory K. McHarg
Executive Producers | Jonathan Braue, Joseph Talbot, Rory K. McHarg, Nate Segall -
Producer | Stevie Ansara
Director of Photography | Dimitrius Ramirez -
Editor | Joseph Talbot
Music Composition | Rhian Sheehan, Louis Baker
Color | Patrick Sexton
Sound Design & Mix | Zak Engel
the pearson twins
Identical twins Adam and Neil Pearson are navigating life in South London with a rare genetic disorder, neurofibromatosis.
Despite their identical DNA, the twins are affected in vastly different ways. The one thing that remains the same is their perspective of life and how to live it best.
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Director | Jonathan Braue
Executive Producers | Jonathan Braue, Joseph Talbot
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Producer | Kenny Ingle
Director of Photography | Cody Cochran -
Editor | Joseph Talbot
Kylie lives with neurofibromatosis, which, from birth, has left her blind in her left eye. As she got older, the plexiform tumors worsened and led them to the decision to remove her eye. Against all odds ,Kylie, a bubbly 16-year-old is a high performing athlete as a back spotter in the Texas Elite Cheer team.
While facing crippling mental blocks and battling low muscle tone because of her condition, she preserves in a sport that favors not only physical aesthetics, but also requires precision, strength and flawless technique.
Being Kylie Earle
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Director | Rory K. McHarg
Executive Producers | Jonathan Braue, Joseph Talbot, Rory K. McHarg, Nate Segall -
Producer | Stevie Ansara
Director of Photography | Dimitrius Ramirez -
Editor | Larissa Hanna
Music Composition | Zak Engel
Mix | Mike Regan
Color | Pat Sexton
Post Producer | Carly Atto
Devin’s film is an intimate portrait of a Detroit native whose radiant joy defies a lifelong diagnosis. Living with neurofibromatosis, Devin rolls through life with humor, faith, and fierce independence—mentoring others, chasing love, and daring to build a future that many living with this rare disorder are never given the chance to imagine.
that’s Devin
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Director | Ariel Ellis
Executive Producers | Jonathan Braue, Joseph Talbot, Rory K. McHarg, Nate Segall -
Producer | Stevie Ansara
Director of Photography | Dimitrius Ramirez -
Editor | Larissa Hanna
Music Composition | Zak Engel
Mix | Mike Regan
Color | Pat Sexton
Post Producer | Carly Atto
These films reveal and honor the incredible medical researchers and doctors who dedicate their lives to finding a cure. We always seek to humanize them beyond the lab, unearthing their purpose as both caregiving physicians and medical researchers.
head & Heart
Dr. Roger Packer | Neuro Oncologist
Dr. Packer’s clinical trials in neurofibromatosis and brain tumors are translational, bringing advances from the bench to the bedside expeditiously.
Dr. Nancy Ratner | PhD, Cincinnati Children’s Hospital
Dr. Ratner's research led to the first drug approved by the FDA to treat NF. The development and usage of the drug Koselugo® (selumetinib) has seen plexiform neurofibromas shrink by up to 33% in some patients
