Neurofibromatosis is a genetic disease that causes tumors to grow on nerve pathways throughout the body. NFX drives bold, high-impact research to discover and develop targeted treatments for neurofibromatosis, or NF.

nfx

  • Longform Story Development
    Director Treatments
    Documentary & Narrative Style
    Event Design
    Social Marketing

  • Pre-Production + Tech Scouting
    Location + Talent Management
    Production + Equipment Management
    Director + DP Talent

  • Editorial
    VFX
    Sound Design
    Music Supervision
    Music Composition
    Archival Management
    Festival Strategy

making the rare visiblE

NF is usually diagnosed in childhood. It manifests very differently from person to person, including in biological siblings. At present, there is no way to predict who will develop which features of the disease and how severe those features will be. We research and develop films that explore the human complexities for families living with this condition, focusing on courage and strength and the medical advancements researchers and doctors are making towards a cure.

Strength & Honor Films
Head & Heart Films

$89MM Raised for research

off the breaks

This is story of Travis Carpenter, who lives with his basic sense of mobility in jeopardy. Travis has lived in the fear of quite literally breaking for most of his life.

From the age of two, a tumor caused by Neurofibromatosis has been growing from his spine down his leg. This is his story… so far.

  • Writer & Director | Rory K. McHarg
    Executive Producers | Jonathan Braue, Joseph Talbot, Rory K. McHarg, Nate Segall

  • Producer | Stevie Ansara
    Director of Photography | Dimitrius Ramirez

  • Editor | Joseph Talbot
    Music Composition | Rhian Sheehan, Louis Baker
    Color | Patrick Sexton
    Sound Design & Mix | Zak Engel

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the pearson twins

Identical twins Adam and Neil Pearson are navigating life in South London with a rare genetic disorder, neurofibromatosis.

Despite their identical DNA, the twins are affected in vastly different ways. The one thing that remains the same is their perspective of life and how to live it best.

  • Director | Jonathan Braue

    Executive Producers | Jonathan Braue, Joseph Talbot

  • Producer | Kenny Ingle


    Director of Photography | Cody Cochran

  • Editor | Joseph Talbot

Kylie lives with neurofibromatosis, which, from birth, has left her blind in her left eye. As she got older, the plexiform tumors worsened and led them to the decision to remove her eye. Against all odds ,Kylie, a bubbly 16-year-old is a high performing athlete as a back spotter in the Texas Elite Cheer team.

While facing crippling mental blocks and battling low muscle tone because of her condition, she preserves in a sport that favors not only physical aesthetics, but also requires precision, strength and flawless technique.

Being Kylie Earle

  • Director | Rory K. McHarg
    Executive Producers | Jonathan Braue, Joseph Talbot, Rory K. McHarg, Nate Segall

  • Producer | Stevie Ansara
    Director of Photography | Dimitrius Ramirez

  • Editor | Larissa Hanna
    Music Composition | Zak Engel
    Mix | Mike Regan
    Color | Pat Sexton
    Post Producer | Carly Atto

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Devin’s film is an intimate portrait of a Detroit native whose radiant joy defies a lifelong diagnosis. Living with neurofibromatosis, Devin rolls through life with humor, faith, and fierce independence—mentoring others, chasing love, and daring to build a future that many living with this rare disorder are never given the chance to imagine.

that’s Devin

  • Director | Ariel Ellis
    Executive Producers | Jonathan Braue, Joseph Talbot, Rory K. McHarg, Nate Segall

  • Producer | Stevie Ansara
    Director of Photography | Dimitrius Ramirez

  • Editor | Larissa Hanna
    Music Composition | Zak Engel
    Mix | Mike Regan
    Color | Pat Sexton
    Post Producer | Carly Atto

These films reveal and honor the incredible medical researchers and doctors who dedicate their lives to finding a cure. We always seek to humanize them beyond the lab, unearthing their purpose as both caregiving physicians and medical researchers.

head & Heart

Dr. Roger Packer | Neuro Oncologist

Dr. Packer’s clinical trials in neurofibromatosis and brain tumors are translational, bringing advances from the bench to the bedside expeditiously.

Dr. Nancy Ratner | PhD, Cincinnati Children’s Hospital

Dr. Ratner's research led to the first drug approved by the FDA to treat NF. The development and usage of the drug Koselugo® (selumetinib) has seen plexiform neurofibromas shrink by up to 33% in some patients

watch the NFX Series
on DOC+